I’ve just had my first week’s vacation all year. As you’ll know if you follow Niamh News, with Fibromyalgia and ME I’m supposed to pace myself, but with the Danish holiday system I don’t get my pay until (over) a year working in the Danish system (except for one week which I’m taking now). It’s been nice to take things easier than normal (although I’ve been out of the house 3 times already with 3 days to go), sleep if not always longer then in a routine that fits me better, but I’ve had a bit of a hard time of it emotionally.
We got a court summons for a bill we haven’t been able to pay yet. Ray still has no jobs prospects here, and fewer now he stripped of knowing the native language well (he is a very articulate man). I’ve only had so much to spare from paying the bills with my wage to pay of the debts we accrued when we had no income for two months, after we’d just moved over. This was the last of them but we had not received any notice things had gone this far. It took until thursday until we had done everything we could right now. It was like a black cloud over the holiday. Yet I was able to manage it better internally because I was on break. I would have flipped had I been at work as the stress of the normal daily routine would have taken me over the edge.
So in some ways it was good it happened when it did, but I’m here on Friday now exhausted, didn’t do half of the things I wanted to do for myself like go swimming or get the house in a cleaner state. I did think about doing some Danish homework whilst it was fresh in my mind ( I just finished one module) and maybe catching up with a few friends.
But as always when I get a chance to rest it like the physical equivalent of someone who bottles up all their emotions and it finally bursts out of them, it’s a purging process but this time with my body not my mind. Everything becomes harder to do, I’m so tired that sitting here typing this is an effort. I know in three days I have to pull it back together for work, but I feel I could take the rest of this month off and still not be fully recovered from this year so far. It’s like a starving person who finally get a limitless supply of food again, they gorge. That’s what my body is doing now, gorging on resting and sleeping.
I know part of this is why I’m so terrible at keeping in contact with friends and family (when we were on speaking terms). The drill of daily life is so demanding that my body has to delay it’s recovery, the same way a person who is in a dangerous situation will delay the fear and grief until the episode is over. Then it hits you bam out of no where. This is what its like for me. So I’m too busy when I’m working and when I’m on holiday I just have enough energy for the basic things you can’t get away from, like dressing and eating and even these things take effort.
So what gets done is what facing me right now, everything else is in the background and just doesn’t get a look in. It’s only when your confronted with someone who is disappointed in your lack of communication that you snap out of it and guilt is a loud enough emotion for you to extend the effort to do something. (Which is why I still send my Nan a card)
It’s never being about a lack of caring on my part, but I kno it can appear that way to some. I accept that people gel or the don’t and that relationships rarely last for long periods and if they do you have to contend with change and this can bring you closer together or further apart. There is no knowing which way it will be until it is.
Because of this I’m never much of a card person. I could go on about how much effort that is, but it not really the issue. The issue is that when I love or trust someone I just feel it. I don’t need to be reminded or pushed into an action that is not the way I operate. Keeping all the commercial factors aside, I believe a real friendship is one where you can not see or talk to a person for 20 years, bump into them one day and catch up as if you saw each other yesterday. I’ve even been lucky enough for this to happen from time to time.
It is however become clear to me just how isolating chronic fatigue can be, and how much a factor this has been in my attitude to this. It’s very hard to explain just how tiring standing up can be for just a few minutes to someone who runs every morning. As a result I have very little social life. I don’t have a lot of spare money so I can’t afford to go out even if I could fit it into my routine.
Plus I know any night I stay out late is likely to be one I don’t sleep too well, as it disrupts my sleep pattern and gets my brain wired far later at night than normal, which requires me an hour or two to wind down from. Which in turn puts my whole week out of whack. My CNS is like an elastic band wrapped too tightly that needs to slowly relax enough that it’s at rest. That just a fragment of what a hyper-sensitive nervous system does to your night life. In some way its a nice excuse that I have travel issues because that far easier to explain when someone from work asks if your coming to a party or not.
So I guess I’ve learned how to be a social hermit in order to take care of my body and mind, but that doesn’t take care of the heart. Unless you learn not to get social gratification from social norms. My Nana lives for her Christmas card list. It hurts her when she doesn’t receive a card from someone. I choose not to go down that path of making it about the card and not the person, which then explains the lack of cards, or texts or MSN’s you’ll get from me. Your either in my life or your not at any given moment, but that doesn’t limit the feeling behind the times we do have and may have again one day. Compared with that, cards just don’t cut it and so therefore go into the background: To the fog-o-war of fatigue.
I offer these words for reflection…